Tag: hEDS

  • Hypermobile Ehlers-Danlos Syndrome Awareness (There’s Always Something New to Learn)

    Hypermobile Ehlers-Danlos Syndrome Awareness (There’s Always Something New to Learn)

                It probably sounds trite and obvious but it is a lesson that many do not seem to take to heart.  To wit: there is always something new to learn when it comes to hypermobility, HSD, and hypermobile Ehlers-Danlos syndrome.  It does not matter if you live with the condition or you are a famous…

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  • Looking Ahead: New Season, Same Ehlers-Danlos Syndrome (Or Is It?)

    Looking Ahead: New Season, Same Ehlers-Danlos Syndrome (Or Is It?)

                A new season is upon us and with it comes an inspiration to review our life practices.  What summer or fall or winter or spring mean at one stage of life is not going to be the same as the years pass and the decades accumulate.  Especially when we live with complex conditions, the…

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  • hEDS and Letting Go: A Meditation

    hEDS and Letting Go: A Meditation

                When we are hypermobile our physical attachments march to their own beat.  Whether a person is a stiff bendy or a complete rubber band, each of us has our story surrounding our attachments.  Physical ones, anyway, at least in the context of hypermobile Ehlers Danlos syndrome.  But what about our mental or psychological attachments? …

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  • Is it Really “Alternative Medicine”?  (Chinese Medicine Today)

    Is it Really “Alternative Medicine”? (Chinese Medicine Today)

                In a recent Two Hearts Wellness blog post I wrote a companion piece to this one.  Titled “A Short Dictionary of Terms: The Language of Chinese Medicine,” I shared thoughts on the changing meanings of English-language vocabulary related to Chinese medicine.  I’ll link a section of it below, but the full essay considered these…

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  • Magnet Therapy for Hypermobile Ehlers-Danlos Syndrome: Gentle, Effective, and … Amazing

    Magnet Therapy for Hypermobile Ehlers-Danlos Syndrome: Gentle, Effective, and … Amazing

                Hypermobile Ehlers-Danlos folks are, each and every one, unique.  It’s never a surprise to have a patient with HSD/hEDS plus MCAS and/or POTS or other manifestations of dysautonomia.  As a practitioner of Chinese medicine who has been treating such patients for over a decade now, I am constantly on the lookout for non-invasive treatments…

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  • AI Slop in Chronic Illness Online Spaces: Some Thoughts

    AI Slop in Chronic Illness Online Spaces: Some Thoughts

                AI slop has come for the chronic illness online community.  Unsurprisingly, it’s derivative and easy to identify.  What is surprising?  It truly is stunning how quickly AI has wedged its way into chronic illness online spaces.  These online communities to date have been meaningful and valuable.  That is all changing, and not for the…

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  • Acupuncture and Hypermobile Ehlers-Danlos Syndrome (Some Thoughts)

    Acupuncture and Hypermobile Ehlers-Danlos Syndrome (Some Thoughts)

                Have you ever had someone say something obnoxious to you and you, instead of coming back with a clever riposte, just sit there like a turnip?  Then, later, all the smart remarks you could have made come to you but it’s too late.  The person has moved on with their life and probably doesn’t…

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  • Spleen, East and West (And Why it Matters When You Have Hypermobile Ehlers-Danlos Syndrome)

    Spleen, East and West (And Why it Matters When You Have Hypermobile Ehlers-Danlos Syndrome)

                The spleen is a little guy, only about the size of a fist or an avocado.  As far as biomedicine is concerned, it’s not a vital organ necessary for survival and can be removed if there are problems.  Chinese medicine does not see things this way.  We are big fans of the Spleen (as…

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  • Ehlers-Danlos Syndromes and Autoimmune Disease

    Ehlers-Danlos Syndromes and Autoimmune Disease

                Can you have EDS and an autoimmune disease?  Both at the same time?  Does a bear leave bowel movements in the woods?  Yes.  And yes, you most certainly can have EDS and an autoimmune disease.  EDS is a gift that just keeps on giving, and for some of us, that means both an HCTD…

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  • Rewriting Your Story? (Thoughts on New HSD/hEDS Diagnostic Criteria)

    Rewriting Your Story? (Thoughts on New HSD/hEDS Diagnostic Criteria)

    There are rumblings in the Ehlers-Danlos syndromes community.  Change is coming.  Big change: the EDS Society is publishing updated diagnostic criteria for all versions of EDS in December of 2026.  This also includes shifts to how hypermobility spectrum disorder (HSD) and hEDS are assessed and categorized.  Early in 2027, the EDS Society’s update will be…

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