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Living With the Seasons According to Chinese Medicine: The MCAS & EDS Version (Are You Ready For Spring?)
Most of the posts on this blog start with hEDS as the baseline and expand outward to include MCAS and/or dysautonomia. In this one, I’m centering MCAS. Spring season brings its challenges for everyone, but when you’re a mastie? Spring can be particularly and specifically extra difficult for those of us with MCAS. This…
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The Empyrean and The Poppy War Trilogy (Some Thoughts on Dragons, Hypermobility, and War)
Did you expect to feel moved when you read The Empyrean series by Rebecca Yarros only to find that the main character, one Violet Sorrengail, lives with her book world’s version of hypermobile Ehlers-Danlos syndrome? Would you be more interested in Rin, the protagonist of The Poppy Wars series if you discovered that she,…
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Dysmotility, Anyone? (Gastroparesis & hEDS)
The word paresis is of Greek origin and it indicates letting go of or weakening or slackness of muscle. It refers to partial paralysis rather than a complete stopping of movement (paralysis). When this word describes what’s going on with a person’s digestive system, it is a problem indeed. Gastroparesis (delayed stomach emptying)…
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Health coaching, Edu-coaching, Consultation: The Which and Why and When for People with Ehlers-Danlos Syndrome
Working with a health coach can be one of the most affirming, valuable, inspiring things you can do when you decide that yes, it is time to make some change. And yet, as a person with a complex condition (or list of conditions) it is, as always, a bit more challenging than what the…
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The Languages of Ehlers-Danlos Syndromes, MCAS, and POTS: Words Count
How do you articulate your experience? Yes, this is a loaded question. If you read it and thought of your joints, your articulations, then you read it just fine. If you went to the implication of verbalizing, you are also correct. Even so, for the purposes of this blog post, I will focus…
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Congee For Zebras (Like Chicken Soup for the Ehlers-Danlos Warrior Soul, but Better)
Chicken soup for the soul? Eh. What about Chinese congee, or rice porridge, for zebras? To me, that sounds just right. In this blog post, consequently, I want share some thoughts about comfort food along with some encouragement for the zebra spirit. We all need encouragement, don’t you think?
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Holistic Health and hEDS 