resources & thought-provoking ideas for flexible folk

How is your sleep? I mean, your night-time sleep (not naps during the day because you’re exhausted). People with EDS and the common comorbids have the same issues that normies can have, true, but there are several characteristic problems that chronic illness folks experience when it comes to slumber. My guess is that your answer…

Autumn is here and the October slide is in motion. You probably know this phrase already, but in case you don’t, here’s the TL/DR: the weather patterns are shifting and you are experiencing flares, increased fatigue, worsening pain, extra-fuzzy brain fog, and/or vertigo to go along with the cooler temperatures and social changes that…

It probably sounds trite and obvious but it is a lesson that many do not seem to take to heart. To wit: there is always something new to learn when it comes to hypermobility, HSD, and hypermobile Ehlers-Danlos syndrome. It does not matter if you live with the condition or you are a famous…

A new season is upon us and with it comes an inspiration to review our life practices. What summer or fall or winter or spring mean at one stage of life is not going to be the same as the years pass and the decades accumulate. Especially when we live with complex conditions, the…

When we are hypermobile our physical attachments march to their own beat. Whether a person is a stiff bendy or a complete rubber band, each of us has our story surrounding our attachments. Physical ones, anyway, at least in the context of hypermobile Ehlers Danlos syndrome. But what about our mental or psychological attachments? …

In a recent Two Hearts Wellness blog post I wrote a companion piece to this one. Titled “A Short Dictionary of Terms: The Language of Chinese Medicine,” I shared thoughts on the changing meanings of English-language vocabulary related to Chinese medicine. I’ll link a section of it below, but the full essay considered these…

Hypermobile Ehlers-Danlos folks are, each and every one, unique. It’s never a surprise to have a patient with HSD/hEDS plus MCAS and/or POTS or other manifestations of dysautonomia. As a practitioner of Chinese medicine who has been treating such patients for over a decade now, I am constantly on the lookout for non-invasive treatments…

***** Nothing is ever simple when it comes to complex chronic conditions like hypermobile Ehlers-Danlos syndrome, especially when the common comorbids–MCAS, and/or POTS–are also muddying the water. From managing your range of symptoms to trying to get a diagnosis (if you want one) to trying to put together a program to manage your condition(s),…

AI slop has come for the chronic illness online community. Unsurprisingly, it’s derivative and easy to identify. What is surprising? It truly is stunning how quickly AI has wedged its way into chronic illness online spaces. These online communities to date have been meaningful and valuable. That is all changing, and not for the…

Have you ever had someone say something obnoxious to you and you, instead of coming back with a clever riposte, just sit there like a turnip? Then, later, all the smart remarks you could have made come to you but it’s too late. The person has moved on with their life and probably doesn’t…