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Healed vs. Cured: A Not-So-Simple Life
***** Nothing is ever simple when it comes to complex chronic conditions like hypermobile Ehlers-Danlos syndrome, especially when the common comorbids–MCAS, and/or POTS–are also muddying the water. From managing your range of symptoms to trying to get a diagnosis (if you want one) to trying to put together a program to manage your condition(s),…
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AI Slop in Chronic Illness Online Spaces: Some Thoughts
AI slop has come for the chronic illness online community. Unsurprisingly, it’s derivative and easy to identify. What is surprising? It truly is stunning how quickly AI has wedged its way into chronic illness online spaces. These online communities to date have been meaningful and valuable. That is all changing, and not for the…
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Acupuncture and Hypermobile Ehlers-Danlos Syndrome (Some Thoughts)
Have you ever had someone say something obnoxious to you and you, instead of coming back with a clever riposte, just sit there like a turnip? Then, later, all the smart remarks you could have made come to you but it’s too late. The person has moved on with their life and probably doesn’t…
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Spleen, East and West (And Why it Matters When You Have Hypermobile Ehlers-Danlos Syndrome)
The spleen is a little guy, only about the size of a fist or an avocado. As far as biomedicine is concerned, it’s not a vital organ necessary for survival and can be removed if there are problems. Chinese medicine does not see things this way. We are big fans of the Spleen (as…
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Ehlers-Danlos Syndromes and Autoimmune Disease
Can you have EDS and an autoimmune disease? Both at the same time? Does a bear leave bowel movements in the woods? Yes. And yes, you most certainly can have EDS and an autoimmune disease. EDS is a gift that just keeps on giving, and for some of us, that means both an HCTD…
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Rewriting Your Story? (Thoughts on New HSD/hEDS Diagnostic Criteria)
There are rumblings in the Ehlers-Danlos syndromes community. Change is coming. Big change: the EDS Society is publishing updated diagnostic criteria for all versions of EDS in December of 2026. This also includes shifts to how hypermobility spectrum disorder (HSD) and hEDS are assessed and categorized. Early in 2027, the EDS Society’s update will be…
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Holistic Health and hEDS 