Holistic Health and hEDS
resources & thought-provoking ideas for flexible folk
Tag: blog post
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Hypermobile Ehlers-Danlos Syndrome Awareness (There’s Always Something New to Learn)
It probably sounds trite and obvious but it is a lesson that many do not seem to take to heart. To wit: there is always something new to learn when it comes to hypermobility, HSD, and hypermobile Ehlers-Danlos syndrome. It does not matter if you live with the condition or you are a famous…
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Looking Ahead: New Season, Same Ehlers-Danlos Syndrome (Or Is It?)
A new season is upon us and with it comes an inspiration to review our life practices. What summer or fall or winter or spring mean at one stage of life is not going to be the same as the years pass and the decades accumulate. Especially when we live with complex conditions, the…
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hEDS and Letting Go: A Meditation
When we are hypermobile our physical attachments march to their own beat. Whether a person is a stiff bendy or a complete rubber band, each of us has our story surrounding our attachments. Physical ones, anyway, at least in the context of hypermobile Ehlers Danlos syndrome. But what about our mental or psychological attachments? …
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Is it Really “Alternative Medicine”? (Chinese Medicine Today)
In a recent Two Hearts Wellness blog post I wrote a companion piece to this one. Titled “A Short Dictionary of Terms: The Language of Chinese Medicine,” I shared thoughts on the changing meanings of English-language vocabulary related to Chinese medicine. I’ll link a section of it below, but the full essay considered these…
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Healed vs. Cured: A Not-So-Simple Life
***** Nothing is ever simple when it comes to complex chronic conditions like hypermobile Ehlers-Danlos syndrome, especially when the common comorbids–MCAS, and/or POTS–are also muddying the water. From managing your range of symptoms to trying to get a diagnosis (if you want one) to trying to put together a program to manage your condition(s),…
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Acupuncture and Hypermobile Ehlers-Danlos Syndrome (Some Thoughts)
Have you ever had someone say something obnoxious to you and you, instead of coming back with a clever riposte, just sit there like a turnip? Then, later, all the smart remarks you could have made come to you but it’s too late. The person has moved on with their life and probably doesn’t…
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Rewriting Your Story? (Thoughts on New HSD/hEDS Diagnostic Criteria)
There are rumblings in the Ehlers-Danlos syndromes community. Change is coming. Big change: the EDS Society is publishing updated diagnostic criteria for all versions of EDS in December of 2026. This also includes shifts to how hypermobility spectrum disorder (HSD) and hEDS are assessed and categorized. Early in 2027, the EDS Society’s update will be…
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Living With the Seasons According to Chinese Medicine: The MCAS & EDS Version (Are You Ready For Spring?)
Most of the posts on this blog start with hEDS as the baseline and expand outward to include MCAS and/or dysautonomia. In this one, I’m centering MCAS. Spring season brings its challenges for everyone, but when you’re a mastie? Spring can be particularly and specifically extra difficult for those of us with MCAS. This…
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Dysmotility, Anyone? (Gastroparesis & hEDS)
The word paresis is of Greek origin and it indicates letting go of or weakening or slackness of muscle. It refers to partial paralysis rather than a complete stopping of movement (paralysis). When this word describes what’s going on with a person’s digestive system, it is a problem indeed. Gastroparesis (delayed stomach emptying)…
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The Languages of Ehlers-Danlos Syndromes, MCAS, and POTS: Words Count
How do you articulate your experience? Yes, this is a loaded question. If you read it and thought of your joints, your articulations, then you read it just fine. If you went to the implication of verbalizing, you are also correct. Even so, for the purposes of this blog post, I will focus…
Holistic Health and hEDS 