Holistic Health and hEDS
resources & thought-provoking ideas for flexible folk
Tag: blog post
-
Healed vs. Cured: A Not-So-Simple Life
***** Nothing is ever simple when it comes to complex chronic conditions like hypermobile Ehlers-Danlos syndrome, especially when the common comorbids–MCAS, and/or POTS–are also muddying the water. From managing your range of symptoms to trying to get a diagnosis (if you want one) to trying to put together a program to manage your condition(s),…
-
Acupuncture and Hypermobile Ehlers-Danlos Syndrome (Some Thoughts)
Have you ever had someone say something obnoxious to you and you, instead of coming back with a clever riposte, just sit there like a turnip? Then, later, all the smart remarks you could have made come to you but it’s too late. The person has moved on with their life and probably doesn’t…
-
Rewriting Your Story? (Thoughts on New HSD/hEDS Diagnostic Criteria)
There are rumblings in the Ehlers-Danlos syndromes community. Change is coming. Big change: the EDS Society is publishing updated diagnostic criteria for all versions of EDS in December of 2026. This also includes shifts to how hypermobility spectrum disorder (HSD) and hEDS are assessed and categorized. Early in 2027, the EDS Society’s update will be…
-
Living With the Seasons According to Chinese Medicine: The MCAS & EDS Version (Are You Ready For Spring?)
Most of the posts on this blog start with hEDS as the baseline and expand outward to include MCAS and/or dysautonomia. In this one, I’m centering MCAS. Spring season brings its challenges for everyone, but when you’re a mastie? Spring can be particularly and specifically extra difficult for those of us with MCAS. This…
-
Dysmotility, Anyone? (Gastroparesis & hEDS)
The word paresis is of Greek origin and it indicates letting go of or weakening or slackness of muscle. It refers to partial paralysis rather than a complete stopping of movement (paralysis). When this word describes what’s going on with a person’s digestive system, it is a problem indeed. Gastroparesis (delayed stomach emptying)…
-
The Languages of Ehlers-Danlos Syndromes, MCAS, and POTS: Words Count
How do you articulate your experience? Yes, this is a loaded question. If you read it and thought of your joints, your articulations, then you read it just fine. If you went to the implication of verbalizing, you are also correct. Even so, for the purposes of this blog post, I will focus…
-
Living With the Seasons According to Chinese Medicine: The EDS Version (Are You Ready For Winter?)
Every season is nested into a context and has its own associations. What do you think about when you ponder winter season? Holidays, colder weather, the space in between fall and spring…? In my practice, about 80% of my EDS, MCAS, and/or POTS patients see winter through the lens of icy hands and feet…
-
Astragalus for Ehlers Danlos Syndrome and MCAS (Or… What is Huang Qi?)
Astragalus… you may have heard of it. If you have EDS and/or MCAS and are familiar with the supplement options popular within the community, you probably have tried it too. Astragalus grows in China, Mongolia, and North Korea and is a beloved herb in Asian tradition. Its Chinese name is huángqi (alternate spelling: huáng…
-
Red Light Therapy and Vibration Plates: Are They Good or Bad for Ehlers Danlos Syndrome and/or MCAS?
Have you ever considered trying red light therapy (RLT) or were you wondering about whether or not a vibration plate might be beneficial? These are two popular tools used for mood support, skincare, wound healing, and pain reduction (RLT) and for lymphatic drainage, bone density support, and muscle stimulation (the plate). You can go…
-
How Chinese Medicine Treats hEDS (Where to Begin)
Acupuncture and other modalities of Chinese medicine can be an excellent resource for people with complex disorders, EDS and the common comorbidities included. But do you know how to get the most out of your treatment when you’re complicated? What happens when you are experiencing pain AND mast cells flares AND gastroparesis AND insomnia…
Holistic Health and hEDS 