resources & thought-provoking ideas for flexible folk

I seriously almost titled this essay “girding your loins for the holidays when you have MCAS.” It kind of does feel like being thrown onto an obstacle course where you have to battle your way from point one (early November) to the finish line (the first week of January), doesn’t it?

Ah, the end of summer…fall will soon be upon us and with this change of season comes an invitation to review how we interact with our environment. Autumn is also a time to consider themes of impermanence and change, don’t you think? The trees shed their leaves and summer says its goodbyes, and so another

Part of sending your kid off to college is the worry factor. It’s pretty normal to be focused on your child’s grades, academic success, personal happiness, and whether or not your baby will be safe on the weekends and at parties. Most parents also wonder whether or not their son or daughter’s major is going

***** Summer heat, especially when a person lives in a region with extreme weather, can be hard on anyone. But if you’re here and reading this, you either have EDS or MCAS or POTS, and maybe you live with the so-called trifecta of all three combined. Consequently, summer may be a challenge that tries you

Even though hEDS is (mistakenly) categorized as a rare disorder, there actually is a lot of information out there once you start looking. But what happens if you start wading in without knowing just how many tangents and rabbit holes might call your name? Without a roadmap, you could easily waste time and lose out

The Ehlers Danlos syndromes mean different things to different people. If you ask what it is, the answer varies depending on perspective. Each one of my patients has their own experience with EDS, some more all-encompassing and damaging than others; others less so (but not in any way, shape, or form less important). By now,

What is going on with my body? … Why is this happening to me? … Hypermobility? Hypermobile Ehlers Danlos syndrome…what is that? And what causes it? … People with dysfunctional connective tissue have a lot of questions, and rightfully so. Without a diagnosis–or at the very least, a coherent narrative regarding their unique presentation–patients with

A web site’s first blog post is fraught, indeed. How might I introduce myself to you so that you will read to the end of it and, I hope, come back again and again for future installments? This web site has lofty goals for you, esteemed reader. My goal is to ask you to consider