Tag: health

  • Acupuncture & EDS: How to Find a Practitioner of Chinese Medicine When You’re a Zebra

    Acupuncture & EDS: How to Find a Practitioner of Chinese Medicine When You’re a Zebra

    ~~~~~             My first blog post about finding an acupuncturist was in 2019, so it’s been a while.  Besides, the original essay (linked here below) was for normies and I think we can all agree that there needs to be a version of this essay for people with complex conditions.  Whether it’s EDS, MCAS, POTS,

    Read more

  • Traveling With Hope: An Interview With Nicola of Earth Balance Tai Chi

    Traveling With Hope: An Interview With Nicola of Earth Balance Tai Chi

    ***** Have you ever tried tai chi or qigong? So many of us get asked if we’ve tried yoga (to the point where some of us want to scream when we hear that word) but it seems to me that Chinese practices are not as common as they could be in the chronic illness community.

    Read more

  • Lipedema: What It Is, What You Can Do About It

    Lipedema: What It Is, What You Can Do About It

                Do you have lumps and bumps or symmetrical pockets of fat on your legs?  What about your arms, hips, abdomen, or buttocks?  If so, you might have lipedema, a chronic condition that has no cure and that can, instead, progress and even lead to lymphedema, a similar (but not the same) disorder.  Though there

    Read more

  • Ehlers Danlos Syndrome: What Does it Mean to You?

    Ehlers Danlos Syndrome: What Does it Mean to You?

    The Ehlers Danlos syndromes mean different things to different people. If you ask what it is, the answer varies depending on perspective. Each one of my patients has their own experience with EDS, some more all-encompassing and damaging than others; others less so (but not in any way, shape, or form less important). By now,

    Read more