Tag: Ehlers Danlos syndromes

  • Living With the Seasons According to Chinese Medicine: The EDS Version (Are You Ready For Fall?)

    Living With the Seasons According to Chinese Medicine: The EDS Version (Are You Ready For Fall?)

    Ah, the end of summer…fall will soon be upon us and with this change of season comes an invitation to review how we interact with our environment. Autumn is also a time to consider themes of impermanence and change, don’t you think? The trees shed their leaves and summer says its goodbyes, and so another

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  • Health Coach For College Students? Yes! (Ehlers Danlos Syndrome Edition)

    Health Coach For College Students? Yes! (Ehlers Danlos Syndrome Edition)

    Part of sending your kid off to college is the worry factor.  It’s pretty normal to be focused on your child’s grades, academic success, personal happiness, and whether or not your baby will be safe on the weekends and at parties.  Most parents also wonder whether or not their son or daughter’s major is going

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  • Living With The Seasons According To Chinese Medicine: Summer Tips For Health & Happiness For Zebras, Potsies, & Masties

    Living With The Seasons According To Chinese Medicine: Summer Tips For Health & Happiness For Zebras, Potsies, & Masties

    ***** Summer heat, especially when a person lives in a region with extreme weather, can be hard on anyone.  But if you’re here and reading this, you either have EDS or MCAS or POTS, and maybe you live with the so-called trifecta of all three combined.  Consequently, summer may be a challenge that tries you

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  • Creating an EDS Bookshelf: Must-Have Reading for Savvy Zebras

    Creating an EDS Bookshelf: Must-Have Reading for Savvy Zebras

    Even though hEDS is (mistakenly) categorized as a rare disorder, there actually is a lot of information out there once you start looking.  But what happens if you start wading in without knowing just how many tangents and rabbit holes might call your name?  Without a roadmap, you could easily waste time and lose out

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  • Medical PTSD and Chronic Illness: Root Causes and Strategies for Survival

    Medical PTSD and Chronic Illness: Root Causes and Strategies for Survival

    Medical PTSD is a form of post-traumatic stress disorder caused by damage experienced within the contextual framework of healthcare.  The trauma might encompass any number of events or occurrences.  However, my focus in this essay is on the experiences of chronic, complex, and/or rare disease populations.  One thing is to have an exceedingly unpleasant one-off

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  • Ehlers Danlos Syndrome: What Does it Mean to You?

    Ehlers Danlos Syndrome: What Does it Mean to You?

    The Ehlers Danlos syndromes mean different things to different people. If you ask what it is, the answer varies depending on perspective. Each one of my patients has their own experience with EDS, some more all-encompassing and damaging than others; others less so (but not in any way, shape, or form less important). By now,

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  • What Causes Hypermobile Ehlers Danlos Syndrome? (A Summary of Theories)

    What Causes Hypermobile Ehlers Danlos Syndrome? (A Summary of Theories)

    What is going on with my body? … Why is this happening to me?  … Hypermobility?  Hypermobile Ehlers Danlos syndrome…what is that?  And what causes it? … People with dysfunctional connective tissue have a lot of questions, and rightfully so.  Without a diagnosis–or at the very least, a coherent narrative regarding their unique presentation–patients with

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  • Welcome to Holistic Health & hEDS

    Welcome to Holistic Health & hEDS

    A web site’s first blog post is fraught, indeed.  How might I introduce myself to you so that you will read to the end of it and, I hope, come back again and again for future installments?  This web site has lofty goals for you, esteemed reader.  My goal is to ask you to consider

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