Category: Uncategorized

  • Diagnosing EDS? (The Why & How of Complex Conditions)

    Diagnosing EDS? (The Why & How of Complex Conditions)

    ***** Diagnosis.             It should–at least in theory–be useful for treatment planning. Having an identified condition should also mean that the prognosis is reasonably clear, at least in theory.             Not so fast.             Anyone with EDS or MCAS or POTS (or MALS … or … or…) knows that diagnosis is rarely linear and you

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  • Acupuncture & EDS: How to Find a Practitioner of Chinese Medicine When You’re a Zebra

    Acupuncture & EDS: How to Find a Practitioner of Chinese Medicine When You’re a Zebra

    ~~~~~             My first blog post about finding an acupuncturist was in 2019, so it’s been a while.  Besides, the original essay (linked here below) was for normies and I think we can all agree that there needs to be a version of this essay for people with complex conditions.  Whether it’s EDS, MCAS, POTS,

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  • Traveling With Hope: An Interview With Nicola of Earth Balance Tai Chi

    Traveling With Hope: An Interview With Nicola of Earth Balance Tai Chi

    ***** Have you ever tried tai chi or qigong? So many of us get asked if we’ve tried yoga (to the point where some of us want to scream when we hear that word) but it seems to me that Chinese practices are not as common as they could be in the chronic illness community.

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  • Lipedema: What It Is, What You Can Do About It

    Lipedema: What It Is, What You Can Do About It

                Do you have lumps and bumps or symmetrical pockets of fat on your legs?  What about your arms, hips, abdomen, or buttocks?  If so, you might have lipedema, a chronic condition that has no cure and that can, instead, progress and even lead to lymphedema, a similar (but not the same) disorder.  Though there

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  • Facial Rejuvenation & EDS? Yes, Please!

    Facial Rejuvenation & EDS? Yes, Please!

                Have you ever wondered about cosmetic acupuncture?  Common questions from anyone, whether a normie or a zebra, relate to things like whether or not it’s safe and if it’s worth the investment.  We all want to know about that before we plunk down our payment for services rendered.  But being a member of the

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  • Ehlers Danlos Syndrome and Men: Three Key Issues

    Ehlers Danlos Syndrome and Men: Three Key Issues

    Men and their experiences living with hypermobile Ehlers Danlos syndrome is a whole topic…one that doesn’t get nearly enough attention in my opinion.  When you look online for info about guys and hEDS, for instance, there just isn’t a lot of useful material.  Nobody is denying that guys can have EDS, but the disorder is

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  • Intuitive Eating vs. Mindful Eating–Which Is Better For You? (Some Tips For Folks With EDS, MCAS, &/or POTS)

    Intuitive Eating vs. Mindful Eating–Which Is Better For You? (Some Tips For Folks With EDS, MCAS, &/or POTS)

    Have you ever thought about the difference between mindful eating and intuitive eating?  They are not the same thing, but both can be helpful approaches to nutrition when a person lives with EDS, MCAS, and/or POTS. Especially when a person is limited in what they can eat, an intentional view can soften the hard edges

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  • Holidays and MCAS: Surviving and Thriving From November To January

    Holidays and MCAS: Surviving and Thriving From November To January

    I seriously almost titled this essay “girding your loins for the holidays when you have MCAS.”  It kind of does feel like being thrown onto an obstacle course where you have to battle your way from point one (early November) to the finish line (the first week of January), doesn’t it?

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  • Tattoos & EDS, MCAS, & POTS, Part III: An Interview With Ink Master Alum Caroline Evans

    Tattoos & EDS, MCAS, & POTS, Part III: An Interview With Ink Master Alum Caroline Evans

    Tattoos for people with EDS is a whole topic.  Yes, it is.  I discovered this when I set out to write a blog post for the community. I had intended to write one single essay that shared useful information for folks with hEDS, MCAS, and/or POTS.  But I know what I already know as a

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  • Tattoos When You Have hEDS, MCAS, &/or POTS? (It’s Complicated)

    Tattoos When You Have hEDS, MCAS, &/or POTS? (It’s Complicated)

    Are you thinking about getting a tattoo?  One question that routinely pops up in online groups and on places like Reddit are questions about ink and EDS.  Is it a realistic option, will the skin heal decently, are they safe for zebras?  People want to know and the questions are certainly valid.  As a practitioner

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