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Creating an EDS Bookshelf: Must-Have Reading for Savvy Zebras
Even though hEDS is (mistakenly) categorized as a rare disorder, there actually is a lot of information out there once you start looking. But what happens if you start wading in without knowing just how many tangents and rabbit holes might call your name? Without a roadmap, you could easily waste time and lose out
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Medical PTSD and Chronic Illness: Root Causes and Strategies for Survival
Medical PTSD is a form of post-traumatic stress disorder caused by damage experienced within the contextual framework of healthcare. The trauma might encompass any number of events or occurrences. However, my focus in this essay is on the experiences of chronic, complex, and/or rare disease populations. One thing is to have an exceedingly unpleasant one-off
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Ehlers Danlos Syndrome: What Does it Mean to You?
The Ehlers Danlos syndromes mean different things to different people. If you ask what it is, the answer varies depending on perspective. Each one of my patients has their own experience with EDS, some more all-encompassing and damaging than others; others less so (but not in any way, shape, or form less important). By now,
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What Causes Hypermobile Ehlers Danlos Syndrome? (A Summary of Theories)
What is going on with my body? … Why is this happening to me? … Hypermobility? Hypermobile Ehlers Danlos syndrome…what is that? And what causes it? … People with dysfunctional connective tissue have a lot of questions, and rightfully so. Without a diagnosis–or at the very least, a coherent narrative regarding their unique presentation–patients with
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Welcome to Holistic Health & hEDS
A web site’s first blog post is fraught, indeed. How might I introduce myself to you so that you will read to the end of it and, I hope, come back again and again for future installments? This web site has lofty goals for you, esteemed reader. My goal is to ask you to consider
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Holistic Health and hEDS 