resources & thought-provoking ideas for flexible folk

There are rumblings in the Ehlers-Danlos syndromes community. Change is coming. Big change: the EDS Society is publishing updated diagnostic criteria for all versions of EDS in December of 2026. This also includes shifts to how hypermobility spectrum disorder (HSD) and hEDS are assessed and categorized. Early in 2027, the EDS Society’s update will be…

Medical PTSD is a form of post-traumatic stress disorder caused by damage experienced within the contextual framework of healthcare. The trauma might encompass any number of events or occurrences. However, my focus in this essay is on the experiences of chronic, complex, and/or rare disease populations. One thing is to have an exceedingly unpleasant one-off…