resources & thought-provoking ideas for flexible folk

Medical PTSD is a form of post-traumatic stress disorder caused by damage experienced within the contextual framework of healthcare. The trauma might encompass any number of events or occurrences. However, my focus in this essay is on the experiences of chronic, complex, and/or rare disease populations. One thing is to have an exceedingly unpleasant one-off…

What is going on with my body? … Why is this happening to me? … Hypermobility? Hypermobile Ehlers Danlos syndrome…what is that? And what causes it? … People with dysfunctional connective tissue have a lot of questions, and rightfully so. Without a diagnosis–or at the very least, a coherent narrative regarding their unique presentation–patients with…

A web site’s first blog post is fraught, indeed. How might I introduce myself to you so that you will read to the end of it and, I hope, come back again and again for future installments? This web site has lofty goals for you, esteemed reader. My goal is to ask you to consider…