resources & thought-provoking ideas for flexible folk

Even though hEDS is (mistakenly) categorized as a rare disorder, there actually is a lot of information out there once you start looking. But what happens if you start wading in without knowing just how many tangents and rabbit holes might call your name? Without a roadmap, you could easily waste time and lose out

What is going on with my body? … Why is this happening to me? … Hypermobility? Hypermobile Ehlers Danlos syndrome…what is that? And what causes it? … People with dysfunctional connective tissue have a lot of questions, and rightfully so. Without a diagnosis–or at the very least, a coherent narrative regarding their unique presentation–patients with

A web site’s first blog post is fraught, indeed. How might I introduce myself to you so that you will read to the end of it and, I hope, come back again and again for future installments? This web site has lofty goals for you, esteemed reader. My goal is to ask you to consider