resources & thought-provoking ideas for flexible folk

I seriously almost titled this essay “girding your loins for the holidays when you have MCAS.” It kind of does feel like being thrown onto an obstacle course where you have to battle your way from point one (early November) to the finish line (the first week of January), doesn’t it?

Tattoos for people with EDS is a whole topic. Yes, it is. I discovered this when I set out to write a blog post for the community. I had intended to write one single essay that shared useful information for folks with hEDS, MCAS, and/or POTS. But I know what I already know as a…

Are you thinking about getting a tattoo? One question that routinely pops up in online groups and on places like Reddit are questions about ink and EDS. Is it a realistic option, will the skin heal decently, are they safe for zebras? People want to know and the questions are certainly valid. As a practitioner…

Note: The companion piece for this essay is “Tattoos When You Have hEDS, MCAS, &/or POTS? (It’s Complicated)“ and in it, I address the topic of tattoos and complex illness from the client’s perspective. If you are starting with this essay, you probably are a tattoo artist. There is a lot of useful information for you…

Ah, the end of summer…fall will soon be upon us and with this change of season comes an invitation to review how we interact with our environment. Autumn is also a time to consider themes of impermanence and change, don’t you think? The trees shed their leaves and summer says its goodbyes, and so another…

Part of sending your kid off to college is the worry factor. It’s pretty normal to be focused on your child’s grades, academic success, personal happiness, and whether or not your baby will be safe on the weekends and at parties. Most parents also wonder whether or not their son or daughter’s major is going…

***** Summer heat, especially when a person lives in a region with extreme weather, can be hard on anyone. But if you’re here and reading this, you either have EDS or MCAS or POTS, and maybe you live with the so-called trifecta of all three combined. Consequently, summer may be a challenge that tries you…

Even though hEDS is (mistakenly) categorized as a rare disorder, there actually is a lot of information out there once you start looking. But what happens if you start wading in without knowing just how many tangents and rabbit holes might call your name? Without a roadmap, you could easily waste time and lose out…

Medical PTSD is a form of post-traumatic stress disorder caused by damage experienced within the contextual framework of healthcare. The trauma might encompass any number of events or occurrences. However, my focus in this essay is on the experiences of chronic, complex, and/or rare disease populations. One thing is to have an exceedingly unpleasant one-off…

The Ehlers Danlos syndromes mean different things to different people. If you ask what it is, the answer varies depending on perspective. Each one of my patients has their own experience with EDS, some more all-encompassing and damaging than others; others less so (but not in any way, shape, or form less important). By now,…